Friday, May 23, 2008

Beanie's 3rd birthday

Wow--I haven't posted in awhile, but not because I didn't want to! Much busy-ness just got in the way. I took on a new part-time job (which, for various reasons I won't go into here, is driving me nearly mad with frustration), threw Beanie a 3rd birthday party, Beanie started, then finished, a special-needs preschool program at the local public school (it ended up being only 2 sessions, as the teacher went out on disability leave, and it was too late in the school year to replace her--what a waste of time!), Beanie started daycare, and all the rest of life went on, as it does.

Beanie's birthday was a blast. It turned out to be a brutally hot day, so we moved most of the party indoors, and filled the wading pools and set up sprinklers outside. We served crackers and cheese, veggies with ranch dip, green salad (mostly for the parents), and fruit salad, along with cake (the party was 3-5 pm, so I didn't serve a full meal). I made a monkey cake (baked a chocolate half-sphere in a stainless-steel bowl, put banana frosting between two layers, chocolate frosted the whole thing, added Ding-Dongs for ears, and drew a monkey mouth, eyes and nose with other frosting). Since that would be too small to feed everyone, I also made monkey face cupcakes (with yellow cake inside, for those who don't care for chocolate). We had an assortment of beverages. The kids all had a great time running in the sprinklers and playing in the pool.

I was stressed out before the party--it was SO hot, my husband was grumpy about a work issue (he works on weekends, so it was fresh), and I was running out of time, but it all came together somehow. Once the party actually starts, I always have a good time.

I'm kind of a nut about my kid's parties, and they are always themed to within an inch or their lives--LOL. Bless the Oriental Trading Company, my chief soursce for cheap party goods! We did a full-on monkey theme ('cause Beanie's my little monkey), with neon monkey tableware, monkey bean-bag toss, pin-the-banana-on-the-monkey, the monkey cake(s), and monkey-printed goodie bags filled with a small stuffed monkey, a monkey-design platic cup, monkey-design bubbles, and monkey stickers. It was monkey madness!

Tuesday, May 13, 2008

Jack Goes to Camp

I want to share a story that changed my life and how I looked at kids who hit or push. Before I had my own children, I used to volunteer for a week each year at a Unitarian church summer camp. The last 2 years I did this, I acted as the Dean, which is a little like being a school principal, if just for a week (along with months of planning). As Dean, I recruited all the volunteer staff, planned the week’s schedule, and was generally in charge of the entire operation (except for foodservice and maintenance). So… one year we had a boy I’ll call “Jack”. Jack was about 9 years old, and a hitter. By the second day of camp, the counselors and I were talking about sending him home, due to his aggressive behavior and hitting other campers. We held an emergency meeting of the adult staff to figure out what to do.

Now, I always really hate to send a child home from camp, because in my experience, it is often the child that you most want to send home that is the one that most needs to be there. But I was also mindful of the fact that we could not allow hitting. We had already tried reasoning, laying down the law, time outs, the threat of lost privileges, and so on, and Jack was not responding. He said to me, with great sorrow, that he didn’t want to be sent home, but also that he was not sure he could always remember to use words instead of fists. So I was in a quandary.

I believe that a good camp experience can change a child’s life. Because camp is a total immersion, 24-hour a day experience, and far removed from “real life”, it can have a profound effect. So, keeping that in mind, we decided to give Jack 24 hours more to see if we could fix the problem, with a new action plan in place. The camp chaplain, a wise and compassionate woman, offered her thoughts. “I’ve been spending some time with Jack, and I think he really wants to touch people, but he doesn’t know how. He wants human contact, and all he can think of is hitting.” So we hatched a plan…we adults would make every effort to touch Jack in appropriate ways, and also to model ways to touch others when Jack was watching. We would pat him on the back, put an arm around his shoulder, shake hands, ruffle his hair or give a hug. We also assigned a junior counselor (a teenager) to be Jack’s constant companion. This teenage boy would stick to Jack like a shadow, being alert for signs that a conflict was escalating so he could step in before things got physical.

We made it through the 24 hours without fists flying…then another day, and another. We had some close calls, but no actual hitting. By the end of the camp week, we were amazed. The angry, aggressive boy that had been Jack was acting happy, he had friends in his cabin group, and he had had a successful week at camp. When his mother came to pick him up, she was astonished. She said he was like a different child. She told us she had waited by the phone the whole week, just sure that we would send him home from camp sooner or later. It came out in our conversation that Jack was adopted as an older child, having been removed from a severely abusive home. “When he first came to us,” the mother said, “he was like a wild animal.” He struggled in school with behavior issues, and had few, if any, friends, so seeing him joking and laughing with his cabin-mates felt like a miracle to her.

Aside from wishing the mother had told us this BEFORE sending Jack to camp, this forever changed my thinking about aggression in children. This child was really a good kid, and he was only doing what he’d been taught by his abusive birth family. He was hurting inside, and knew no other way to express it. We could have tried more and different punishments to try to correct the behavior, but it took a 180 degree turn around in our approach to really make it work.

Other reasons children push or hit can be poor language skills (so they are physical out of frustration that they cannot communicate) or sensory integration dysfunction (in which the brain is not processing information from the senses in a typical way, so they need the sensory feedback of pushing or hitting). In any case, children who hit, push or crash into others, when punishment is clearly not solving the problem, I would encourage you to “think outside the time out” and try to figure out what is behind the behavior. If you can address the root problem, rather than the symptom you may have much greater success.

Tuesday, May 6, 2008

What makes a great preschool?

As I am thinking about preschool for Beanie, I am reflecting on what goes into a well-run preschool program. I find myself first just looking for something close and affordable, but the elements of the program are very important. Preschools come in many "flavors", such as developmental, academic, Montessori, Waldorf, bilingual, and on and on. Some use a combination approach of more than one of these. I don't want an academic preschool in which the children spend much of their time seated at tables doing worksheets, or being drilled on letters, colors or numbers. I know that young children don't do their best learning in that way. I want any learning to occur through play, because play is the work of young children. In fact, even kindergarten has become disturbingly academic in some schools, but that's another issue. I think an ideal preschool day should address all different learning styles, and should include some inside time, some outside time, art projects, music, movement, active play, pretend play, stories, experimenting with different materials, group activities and individual activities.

For a class, I had to create a fictional welcome letter for my ideal preschool, so here's what I came up with (now, if only I could find this school!):

Dear Preschool Families—

Welcome to Totally Perfect Preschool. I am excited about all that we will be learning together this year. Our school believes that education is a partnership between the school and the family. We welcome your participation and input! We want you to be involved, at whatever level you prefer. Attached you will find a calendar for the year, highlighting school holidays, field trips and special events. There is also a sample weekly schedule, giving an overview of what a typical week will include—this schedule is subject to changes, but will give you an idea of what your child’s day will be like. Also, please get in the habit of checking the bulletin board outside the classroom door for up-to-date weekly schedules, information, and sign-up sheets for various activities. Also, check your child’s “mailbox” (labeled slots above the cubbies) for flyers, newsletters, and other information, as well as finished artwork to go home.

We want your talents! Volunteer opportunities are available in many areas. Please fill out the attached volunteer sheet if you are willing to help out. There are many positions available, such as room parent, classroom volunteers, playground volunteers, field trip driver/chaperones, fundraising volunteers, party helpers, and class photographer. If you are not available to volunteer during the day, we need parents to prepare materials at home (cutting out paper shapes for an art project, for instance), and there are monthly Saturday morning work parties to spruce up the building and grounds. If you have a special skill or talent you would like to share, please include that on the form!

We have a new program this year to help us get to know each other better. Every other week, we will have “family snack and share” time. If possible, we would like each family to sign up for one of these dates (a sign-up sheet with available dates will be posted outside the classroom by the beginning of next week). This is a chance for you to share your family’s or ancestors’ origins with the students. We invite you to share your cultural heritage through telling or reading a story, showing pictures, teaching a traditional song or dance, leading an art activity, or anything else you would like to do. We ask that you bring a snack to share. This may be a food traditional to your country of origin, or not. (Please bring the recipe or a list of ingredients to avoid any food allergy problems.)

In addition, we have a parent meeting next week for new AND returning families (see schedule). This is a chance for new families to meet the staff and get information, for returning families to hear what’s new this year, and for all of our families to get acquainted with each other. There will be child care provided in the classrooms during the meeting, and an ice cream social for all immediately afterwards. We look forward to seeing you there!

Several times during the school year, we will be presenting parent forum evenings. These will be discussions of various issues having to do with parenting, and will be led by experts in the field. These are always optional, but we encourage you to attend. These evenings will feature a presentation by the speaker, followed by a question-and-answer and discussion period. Childcare will be provided.

Please don’t hesitate to call or email me about anything that concerns you. I will be happy to schedule a meeting with you at any time during the school year, and will attempt to respond to all emails and calls within 24 hours. If you have any special concerns about your child, or if something is going on in your child’s life that may affect how s/he functions in school, please let me know, so that we can work together to create a positive educational experience for your child. Pick-up and drop-off times are very busy, so if you have a concern and wish to discuss it with me, please make an appointment, so that I can give you my full attention. I look forward to getting to know you and your child, as we learn and grow together!

Very truly yours,
XXXXXXXXXXXX
Totally Perfect Preschool, Room 2 (“Jellybean” class)

Friday, May 2, 2008

Inch by inch, row by row...

Things are growing here--not just my children, either! I have been out digging in the garden, planting vegetables these last two days. There is something satisfying, on an almost primal level, about making things grow. I think it's in our DNA to take pleasure in planting and tending food crops. I started with seeds, planted (with potting soil) in egg cartons. You have to use the cardboard kind, not the shiny plastic foam ones, incidentally. Once they have successfully sprouted indoors, you cut apart each egg cup section and put the whole thing in the ground. No need to transplant, the egg carton just degrades into the soil. In fact, when I planted the tiny sprouts, the roots had already begun to grow through the egg cartons, so they are on their way.

To protect them as they get used to being outdoors, I cut the bottom off some clear plastic cups and inverted one over each seedling. I even found corn-based biodegradable clear cups--how cool is that? They are fully compost-able! I got them at Smart & Final, a warehouse grocery and food service supply store.

We also experimented with homemade seed tape for the radishes and carrots, an idea I found in a book. The way you do it is to cover a table with foil or wax paper, then lay out some white toilet paper in a strip as long as your garden rows will be, or just a bit longer. Work indoors or in a protected area, or your TP will blow away! Then you make a paste of flour and water (mix it about as thick as house paint) and paint it down the middle of the TP with a small brush or the back of a spoon, working gently so as not to tear the paper. Next, you put your seeds into the paste, spaced as far apart as the seed package recommends (often for radishes it's one inch or so). You then fold over the outside edges of the TP into the paste, both sides over the center, like you were wrapping a burrito, until you have one long, narrow strip. Let it dry thoroughly. When they are dry, roll the strips up and place them in a plastic bag. Every two weeks, plant one of these strips in your garden. The toilet paper will break down quickly in the soil, and the flour paste will dissolve, providing some extra nutrients for the seeds. By spacing your plantings every two weeks, you should have new radishes or carrots maturing all season. We just tried this for the first time this year, so I'll let you know how it goes! But at least we won't have all our radishes planted together in a clump, where they have no room to grow (this happened at my church's garden when the Sunday School kids planted them).

Anyway, my real challenge may be keeping the bunnies and squirrels out of the "buffet". I'll keep you posted!

Tuesday, April 29, 2008

Advocacy

There is more to caring about children than simply devoting myself to the welfare of my own children, or even those of my larger circle of friends or community. It's more than volunteering in my children's schools, or getting them to appointments and lessons, or sending them to camp. In order to really stand up for children, I must advocate for the welfare of all children.

Advocacy for children as an Early Childhood Education (ECE) professional or parent includes not only advocating for the children in one’s home, classroom or center, but advocating for all children. Though I am not currently teaching, I keep informed as to the issues regarding early childhood care, and contact my legislators as appropriate. I read books, websites and newspaper articles on issues related to early childhood, and discuss them with my friends, my children’s teachers, school administrators and community leaders. I write and call my elected representatives, at the national, state and local level. I vote in every election. Children cannot vote, so it is up to concerned adults to keep these issues in the public eye. We now know so much about the importance of ECE issues, since these are critical learning years for children’s futures, Since so many children are in some form of child care or preschool now due to more mothers in the workforce, it is incumbent on all of us to advocate for quality early childhood programs. It is also cost effective for society, since every dollar spent on high quality, research-based programs saves many more dollars in the cost of later interventions.

Saturday, April 26, 2008

TV and Me

We are now near the end of TV-Turn-Off Week. I will most likely love and hate the return to our TV viewing. I have, on the one hand, really enjoyed this week of TV abstinence, especially in seeing my boys engage in pretend play, outdoor activities, and playing with each other. On the other hand, my life is easier when I can distract my toddler with Bunnytown or My Friends Tigger and Pooh for long enough to actually complete some work. So I have mixed feelings, to say the least.

I also find I enjoy the silence, even as I miss the entertainment of my favorite satirical news shows. No TV makes me a better parent, too, as I am forced to interact with my kids more. We have really enjoyed playing outdoors after dinner, when it's cool outside. Since it now stays light late, there is no reason we couldn't do this every day, but we usually default to watching TV instead, except for this last week. This means the kids are watching a show, my husband is on the computer, and I'm in the kitchen, cleaning up dinner. This keeps us all in our own little worlds. Without TV, I feel like I need to interact, to show the kids that we can have more fun without TV, so we go outside and play active games, or stay in and play board games, or just make up something to pretend. One night we drove over to a lake near our home and walked around the lake at twilight, which was beautiful--we saw a huge blue heron.

Lastly, the first day of no-TV week, when my kids were having a complete melt-down at the thought of 7 days of no TV or computer games, convinced me firmly that TV had become way too important in our lives (I told my toddler that Tigger and Pooh and the Bunnytown bunnies were on vacation). That made me think that some form of no-TV time needs to become a permanent part of our routine. We used to have no-TV Tuesdays, but somehow we dropped that habit awhile back. I think it was moving three times in the last year-and-a-half. Moving required some kind of distraction to keep the kids occupied while I packed, loaded U-Hauls, cleaned, and finally unpacked. I found myself encouraging the kids to watch more TV, just so I could get it all done. But now that there are no moves on the horizon (knock wood), we need to get back to finding other ways to spend our time. I am especially worried about the long, hot summer approaching. I have nothing on my boys' schedules except one week of camp for the older one, but I don't want it to degenerate into two-and-a-half months or non-stop electronic entertainment. I will have to think long and hard about how to set reasonable limits on TV and computer time. (I remember back before I had children when I swore I would never use TV as a babysitter--ha!)

Best qualities in early childhood teachers...

Here again I put on my early childhood educator hat, and share some thoughts about what makes a good preschool teacher. There are many important qualities that a great early childhood teacher must have, but two of the most important, in my opinion, are caring and flexibility.

To be a caring teacher means to really see each child as an individual, and to try to connect with him or her as a person. We must look below the surface and see what makes each child unique. We must get to know their gifts and their challenges (for every one of us has both), and help them have the best class experience possible. Preschool is often their first school experience, and may set the tone for everything that follows. In order for them to see school as a positive place where they are valued and their specialness is treasured, we must exhibit caring every day. This is far more important that whether they leave knowing how to count to 20, or naming all the colors. It is said that, even with adults, in every interaction, people may forget what you said, but they remember how you made them FEEL. Another person suggested that being a good listener is important, and I believe this is part of caring, too. To really listen to a child is a gift. So often in life we are busy, busy, busy, and it is hard to stop and truly listen, but it may be the most powerful thing we can do.

Another important quality is flexibility, so that we can adapt our teaching to the situation, work with different learning styles, and create lessons around ideas that emerge from the students themselves. Every class is a little bit different than every other class, and every child is unique. Many factors can affect the climate of a particular class, and we need to be ready to adapt. Also, individual children may need different things from us. A child who is very shy may need to be drawn out gently, while a child who is boisterous and active may need help settling down at quiet times. A lonely child may need help learning how to make friends, and a child who is going through a family crisis may need extra nurturing. In every case, we need to be ready to be flexible enough to make the most of every situation.

A great school is one where a child feels welcome, where there is developmentally-appropriate curriculum, and where the child and the family feel like members of a community. Some studies I’ve seen have revealed that when a child feels a connection with the teacher, learning is enhanced and social skills improve. It is important that every child feels valued.

Tuesday, April 22, 2008

TV Turn-off Week

Happy TV Turn-off Week to all! We are having a lot of fun going TV-free (and computer-game-free) for the week. This evening we were outside playing "steal the bacon" with Monkeyboy for a good 45 minutes--what a blast. Beanie doesn't understand how to play, but he gets in on it by running around pretending he's flying (complete with "whoosh" sound effects). Usually, after dinner we are all in our own worlds--DH (dear husband) playing computer games, Beanie and Monkeyboy watching TV, and me doing dishes or laundry. Turning off the electronics made us be more creative at finding something to do. Now that it stays light later, we can be outside after dinner, but we rarely think of it. I also enjoy sitting around reading with my DH after the boys go to sleep--I find the silence and lack of background noise refreshing (and I am a major TV addict---I'm a news junkie, and also have my favorite trashy reality shows). We are liking it so much we are thinking of making it one week every month! [Blogging is exempt from the ban, though--gotta say my piece!]

Monday, April 21, 2008

An early childhood educator's response to stress.

In my forum here today, I take a break from telling the stories of my own life, and address in a more general way various issues that have to do with early childhood. This is something I wrote for a class I took on building self-esteem in young children. It is written from the perspective of an early childhood educator, and is a discussion of the warning signs of stress in children and what teachers or caregivers can do to respond to a child's stress.

Many things cause stress in life. As adults, work, relationships, money, and the time crunches we all experience can cause stress. In my own life, some of the things that help relieve stress are getting out in nature, walking or biking, playing with my kids (unless they are the ones causing my stress!), getting involved in a hobby (mine’s scrapbooking), reading a good book, or calling a friend.

Many kinds of things, large and small, can cause stress in a child’s life. Stress can be caused by death or serious illness in the family, divorce or custody changes, moving (across town or around the world), getting a new sibling, family money troubles, parents arguing a lot, being bullied, learning a new language, having a learning disability or developmental delay, being abused (mentally, physically, sexually), witnessing abuse of another, not having the “right” clothes, being excluded, feeling shy, not knowing new routines, a parent leaving for a business trip, toilet training, a friend moving away, or many other reasons. A child experiencing stress may become withdrawn, act aggressive, seem depressed, have toilet accidents (when previously able to stay dry), regress to babyish behavior, be unusually clingy or whiny, cry more easily than usual, act overly silly, be quick to anger or take offense, be unable to sit still, or want to hide. It seems to me that any uncharacteristic behavior may be a sign of stress (a quiet child who suddenly gets loud, or a loud child who suddenly acts very quiet, for example).

Appropriate ways of helping a child experiencing stress would depend on the nature and severity of the stress, and on the personality of the child. Showing caring and empathy would be a beginning. Listening to the child and really letting the child feel heard and cared about is important. Books can help introduce uncomfortable subjects, and let a child know that s/he is not the only one to experience a particular situation. Dramatic play can be a “safe” way to explore feelings—playing a character, or having a puppet speak, may allow children to say things they are uncomfortable expressing as themselves. In some cases, a child may be experiencing a level of stress that warrants professional help, and in those cases, the family may need to be referred to the appropriate agency or professional (using the utmost confidentiality and tact, of course). In some cases art may help express difficult feelings, and other children may need active outdoor play to “blow off steam” when they are feeling stress. Some children may need extra hugs and nurturing, or to be given a classroom job to feel important and needed. Structure and routine may be very comforting to a child experiencing upheaval in their home life. In short, the response must be tailored to the child. We may not always even know what is causing the stress, but we can provide a safe haven in the classroom where they can experience a brief respite.

Sunday, April 20, 2008

And still more of Beanie's history...

So, Beanie started with physical therapy and early intervention services. As he got older and began talking, it became clear that he had difficulty with speech and language, so we added speech therapy (and there is a shortage of qualified speech therapists, at least in our area, so it took while to get him set up with a speech therapist). After an occupational therapy evaluation, it was recommended that we add some OT, as well.

Some people wonder what on earth they do in speech therapy and occupational therapy for toddlers. The answer is...play! In fact, that's what they do in all therapy for toddlers, because they have no motivation to do any of the exercises if it doesn't seem like play. OT basically works on fine motor skills and sensory development (PT covers most of the gross motor skills). Speech therapy works on oral-motor skills through blowing bubbles, making kissing noises, exercising the tongue by licking the sides of the mouth, top lip, and sticking out the tongue, and all kinds of silly activities like that. Beanie thought it was great fun!

Saturday, April 19, 2008

More of Beanie's story

Okay, so here another installment of Beanie's past history...I'll get up to current events soon, I promise. Anyhow, Beanie had a scan (MRI) of his brain to see it there were any structural problems causing his poor weight gain and low muscle tone in his neck and torso. The MRI came back inconclusive. So, back to Dr. Doom we went, to hear what she had to say, which was...not much. She suggested we have him evaluated by the local Regional Center (http://www.dds.ca.gov/RC/RCSvs.cfm) for possible early intervention services. [from the Regional Centers' Early Start Program page: "Families whose infants or toddlers have or are at risk for developmental delay or disability can receive an "Early Start" in the State of California. Teams of service coordinators, healthcare providers, early intervention specialists, therapists, and parent resource specialists can evaluate and assess an infant or toddler and provide appropriate early intervention services to children eligible for California's Early Intervention system of services."]

She explained that, if they approved him for services like physical therapy, it would be at no charge to me, and since it certainly would not do him any harm, and might be very beneficial to him, why not take it? That seemed reasonable and non-invasive, so I set up an interview.

He was assessed by a developmental specialist, and initially approved for home-based Early Intervention and Physical Therapy services. Shortly thereafter, we set up appointments with an early intervention specialist and a physical therapist, both of whom would come to our home once a week (separately) and work with Beanie.

The PT would do things like have him lie on his tummy on an inflatable ball and work with a toy set about head-high on a box, so that he had to lift up his head and shoulders to play (thus strengthening his neck and upper back). The EI person (the delightful Karla, who would be with us for well over a year and become a family friend) worked with him on a variety of tasks exploring sensory, fine-motor, gross-motor and cognitive skills, such as having him reach into a bag to feel different textures, or pulling on a ribbon to get a toy, or trying to grab a toy held out to him, all the while narrating her actions to develop language skills. Both the therapists would offer suggestions for things to do with him in between visits, to aid in developing his weak areas. It felt good to finally be working on treating his deficits, even though we still had no specific diagnosis. So on our journey went...

Wednesday, April 16, 2008

News of the day

Taking a break this time from telling Beanie's past history to write about some current events.... As I said in my introduction, I have two boys, Beanie and his older brother, who is 7 and in 2nd grade. Big bro's nickname as a baby was "Pickle" but somehow that seems too baby-ish for him now. I think now I will call him Monkeyboy, for his love of climbing anything, anywhere.

Anyway, last week Monkeyboy had an animal report to complete, along with a model of the animal's habitat, for the school science fair. He chose to write about eagles. He was very intimidated by the size of the project (8 pages!) and didn't want to do it, but with some coaching by me, he was able to break it down into small steps and tackle it. He ended up saying it was really fun and interesting, and he did a good job. Now, Mamallama (that's me) used to build props and even do museum exhibits, so it took all my willpower not to simply take over the habitat building part and do it for him (must resist urge ...but I LOVE building models...no, must resist...must resist...). In the end, he did it himself, with only minimal technical assistance from me (e.g. he wanted the eagle--a plastic toy figure--to look like it was flying, so I used fishing line to suspend it from the top of the box and anchor it to the bottom, but since I was only implementing his idea, it seemed okay for me to do it). I also helped to make the tree trunk he sculpted out of brown Playdoh sturdier by adding some support and bracing. But I always wrestle a little with how much assistance to give, and how much to let him struggle to find a way to do it himself. I have definitely seen school projects where you could tell there was heavy parental involvement.

Tonight we will go to school to see all the projects from all the grades at the Science Fair.

In addition, he was required to give his report orally to another class. This was a MAJOR source of stress for him. He was so scared to stand up in front of a class of children he didn't know well. But yesterday he gave his report to a classroom of 3rd graders, and the teacher told him it was good enough to have been done by a 3rd grader! He was so proud he could hardly contain himself. So I am one proud Mamallama today!

More tomorrow...stay tuned!

Tuesday, April 15, 2008

The Beanie story goes on...

The nurses told me to return in about an hour, so I went off to the hospital cafeteria (making sure the had my cell number so they could call me if they needed me) and had a bagel and coffee. I tried to read the newspaper, with moderate success. Eventually I headed back to the MRI suite. After a bit, they brought Beanie out. If you've ever seen the cribs they put babies in in the hospital (ones who are too big for a bassinet), they look like large metal cages on wheels. He was wrapped up in a white blanket, amid the white sheets with only his face showing...at first I couldn't even see he was in there. He was groggy from the anesthesia, but fine overall. When he woke up enough to nurse, I fed him.

After the docs had checked him over and were satisfied that he hadn't suffered any ill effects from the sedation and the procedure, we were discharged and our long ordeal was over. Two weeks later we got the results..."inconclusive". Arrgh! We went through all that for "inconclusive"?? They said there were no obvious brain abnormalities, which was good, but there were some atypical patterns of myelination...which might indicate a problem, or might not. I was frustrated, to say the least, that is was not a more definitive clean bill of health, after all we had put him through. As with all his other tests, we didn't learn much.

[Myelination explained here: http://www.urmc.rochester.edu/smd/Rad/neuroanatomy/nl_myelination.htm & http://en.wikipedia.org/wiki/Myelination]

He showed no long term effects from it, but I still felt bad about it. When Dr. C suggested we repeat the test at age 2 to compare, I was skeptical. In fact, she saw him every six months until we moved away from LA and never brought up MRI testing again, so we skipped it (at this writing he is nearly 3, and doing very well, so we have not, thankfully, had another MRI for him).

Sunday, April 13, 2008

Beanie's story, continued... So we went off to the pediatric neurologist to try to figure out what was keeping baby Beanie for gaining enough weight. He was about 3 months old. Dr. C checked him over, ordered a few tests, and reviewed his chart. She noted that his head circumference was normal at birth, but had failed to keep growing as expected. His weight was in the 2nd percentile for his age (meaning 98 % of boys his age weighted more than he did), and so was his head circ. His height was around 40th percentile, which was okay. The head circumference might mean he just had a naturally small head, which is not a problem, or it could be that his brain had simply stopped growing, she explained matter-of-factly. Okay, not what mommy wants to hear about her precious boy. If he had simply stopped developing, there would be nothing we could do except make him comfortable and wait (for him to die, was the clear unspoken end of that sentence). She explained this in the same tones you might use to tell someone their child had a slight overbite, but would probably grow out of it...as if is were nothing terribly worrisome, just an interesting case.


I went out to my car with Beanie and held him on my lap and just wept. I cried until I had no more tears. Then a song came into my head..."I don't know much, but I know I love you, and that may be all I need to know." And I sang these words softly to him as he nursed there in the car, and told him I loved him, and hoped he would be okay.


A mom friend of mine who is also a doctor once remarked, "the LAST thing you want your child to be to a doctor is an 'interesting case'!" She had also had taken her child to Dr. C, because her daughter had her head pulled to one side as an infant. Dr. C told her that, among other possibilities, it could be that her daughter's brain was atrophying on one side. "Oh, Dr. C?" she told me, "we call her 'Dr. Doom'!!" Her daughter turned out to be fine, suffering from nothing more serious than tight neck muscles, and that made me feel better.


Anyway, nothing conclusive was revealed in any of the tests Dr. C ran, so she suggested an MRI of his brain, to look for any abnormalities. So we scheduled one at UCLA hospital. It took multiple phone calls to get it approved by my insurance and then scheduled. Now, UCLA has two hospital campuses. The main one is on the UCLA campus in Westwood, and the other is UCLA-Santa Monica, which is a smaller hospital in Santa Monica that UCLA took over a few years ago. When Beanie was hospitalized at 2 weeks old for breathing problems, is was at UCLA-Santa Monica. So I got myself scheduled for the test at UCLA-SM, or so I thought.



The instructions for preparing for the test included no food for 12 hours before--this is NOT fun for a 4-month-old (which was his age by the time of the test), who normally eats every few hours during the day. Since one has to be perfectly still for the test to work, babies have to be sedated ("asleep" under anesthesia) during the test, and fasting is the normal protocol for this.



Beanie was breastfed, but I was also supplementing him with formula to try to put on weight. He had never had anything else at this point, but the nurses said he could have clear juice up until 4 hours before the test, so I got some white grape juice to give him, just so the poor baby could have a little sustenance during the night. His test was scheduled for 8 in the morning, so we stopped all food except juice after 8 pm the night before. After a not too restful night with a cranky, hungry baby (not even juice past 4 am), we set off for the hospital in Santa Monica. After some confusion (the first information desk clerk sent us to the wrong floor), we finally found the MRI center...only to find they had no record of our appointment. Beanie was screaming (he was hungry, poor little guy), and no one seemed to know what to do with us. A supervisor was consulted, and she thought perhaps we were at the wrong hospital. She explained that most pediatric sedation MRI's were done at the main UCLA hospital campus in Westwood. Through all of the scheduling, I had always thought we were talking about UCLA-SM, since that's where I had been referred by my insurance, that's what my authorization paperwork said, and that's what I had asked for when i fist made the appointment. BUT somehow, I had, in fact been scheduled for UCLA-Westwood, as we determined after a few crazy phone calls (a screaming baby made it hard to hear, too). So now I was in Santa Monica, while my scheduled appointment time came and went in Westwood. Westwood told me to come over as soon as possible and they would work me in.

Now, if you know LA westside traffic, you know that getting from Santa Monica to the UCLA campus, though not far in miles, is a long way in traffic, but off we went. Beanie was NOT amused by being loaded back into the car seat, with still no food. I drove to UCLA, navigated the parking labyrinth, picked up the baby in the carrier seat, and hiked off to the MRI suite (a long walk from the parking lot, I can tell you that much).

Since we were about an hour late for our appointment time, they had taken another patient ahead of us, and we had to wait. So I paced the small waiting room with my screaming child, now nearly apoplectic with anger and hunger. I'm sure he could not figure out why his beloved breastmilk was not being offered. He must have felt frustrated beyond belief..."I am telling you people the only way I know how that I AM HUNGRY; why won't you feed me already???" All told we waited almost an hour for him to be called in, as I tried every non-food form of comfort I could think of (hugs, singing, bouncing, rocking). Other adult patients waiting felt so sorry for him--THEY wouldn't like having to fast for 12 hours, and they couldn't imagine what it was like for a baby. By now it was going on 14 hours with out any food for my poor little guy.

Finally they called his name, and we followed a nurse back to the ante-room outside the MRI chamber. There they inserted and IV line into his leg to administer the sedation, which did nothing to improve his mood, believe me.
Then they make you sign a waiver stating that you understand the risk of anesthesia (which include, "death", of course). I signed, but it didn't sit easily with me. Unfortunately, they had to take him into the room and get him in place before sedating him, and I was not allowed to come along, so now, on top of my (to his point of view) betrayal by suddenly deciding not to feed him, I was handing him over to strangers who had already caused him pain (the IV line), and who would take him into a cold, sterile room with a big, scary machine, and away from Mommy. I felt heartless.

[To be continued...]

Thursday, April 10, 2008

Special needs frustration

Hi, again. As I posted before, my toddler has some special needs. Those of you who have been down this path know how complex it is just to figure out what is wrong, and then what to do about it. My toddler was nicknamed Jellybean (hence the name of this blog) while in utero, which evolved into Beanie, Beanie Baby, Beanie Boy, and other variations on this theme. So, for the purposes of this blog (and guarding my family's privacy), I will call him Beanie here.

Anyway...so when Beanie was born, he was apparently fine, but at two weeks old he had an episode of difficulty breathing, slow heart-rate and low body temp. He was hospitalized while they tested him for everything they could think of. All the tests came back negative, normal or inconclusive. He got better, and they sent him home with an apnea monitor (a device that sense breathing stoppages and sounds a shrieking alarm). These are reassuring in one sense--since they won't stop breathing without you knowing about it. But they are also prone to numerous false alarms at all hours of the day and night, causing terror at first, and then annoyance once you get used to it. I had kind of a love/hate relationship with the monitor (only without much of the love).

Following this episode, he had no further breathing problems, but did have real trouble gaining enough weight. The guidelines for healthy weight gain in infants is one half ounce to one ounce per day. (Imagine is adults gained a pound every 16 days!) Some weeks Beanie would gain only an ounce in a week. I fed him and fed him, but he was not interested in eating much, and also was very sleepy and would nod off before finishing a meal. I was frantic to get some weight on him (nurses used phrases like "failure to thrive" that made me feel like a horrible mother, and made me afraid for him).

Initially, his pediatrician was not concerned, even though I was very worried, and my lactation consultant was, as well. At his well-baby visits, the doc would brush off my concerns about his weight. Eventually, though, the doc became very worried, and suddenly it was treated as an emergency (with the implication of why hadn't I brought this to his attention sooner?). We were referred to a pediatric neurologist (which surprised me--I would have thought maybe a gastro-enterologist or something), whom we eventually referred to as "Dr. Doom".

Tomorrow--the saga continues--what did Dr. Doom say?

Monday, April 7, 2008

Jellybe-ginnings

So this is my new blog, called Jellybean Journal, which is my place to write about parenting issues and other stuff. I am: a married mom of two boys, 40-something, college-degreed in Drama (emphasis in set design and theater technology), certified in Early Childhood Education, living in southern California. My boys are 2-almost-3 and 7.

My little guy has some developmental issues, like delays in speech and fine motor skills. So, my goals for this spring are to work with him more on his exercises (gross motor and oral/language development) and to be more fit and healthy. That last one involves the whole family, as I am on a quest to introduce more veggies, lean protein and whole grains into family meals.

Here I will share thoughts on my life and child development and parenting.