Tuesday, April 15, 2008

The Beanie story goes on...

The nurses told me to return in about an hour, so I went off to the hospital cafeteria (making sure the had my cell number so they could call me if they needed me) and had a bagel and coffee. I tried to read the newspaper, with moderate success. Eventually I headed back to the MRI suite. After a bit, they brought Beanie out. If you've ever seen the cribs they put babies in in the hospital (ones who are too big for a bassinet), they look like large metal cages on wheels. He was wrapped up in a white blanket, amid the white sheets with only his face showing...at first I couldn't even see he was in there. He was groggy from the anesthesia, but fine overall. When he woke up enough to nurse, I fed him.

After the docs had checked him over and were satisfied that he hadn't suffered any ill effects from the sedation and the procedure, we were discharged and our long ordeal was over. Two weeks later we got the results..."inconclusive". Arrgh! We went through all that for "inconclusive"?? They said there were no obvious brain abnormalities, which was good, but there were some atypical patterns of myelination...which might indicate a problem, or might not. I was frustrated, to say the least, that is was not a more definitive clean bill of health, after all we had put him through. As with all his other tests, we didn't learn much.

[Myelination explained here: http://www.urmc.rochester.edu/smd/Rad/neuroanatomy/nl_myelination.htm & http://en.wikipedia.org/wiki/Myelination]

He showed no long term effects from it, but I still felt bad about it. When Dr. C suggested we repeat the test at age 2 to compare, I was skeptical. In fact, she saw him every six months until we moved away from LA and never brought up MRI testing again, so we skipped it (at this writing he is nearly 3, and doing very well, so we have not, thankfully, had another MRI for him).

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